Welcome to GirlyAutism!

 

This life I live is a day by day up to the minute battle between God’s word and my selfish desires, good and evil, right and wrong, want and need, neuro-typical and autistic spectrum quirks.

I would love to say that it is a cake walk.  That I’m a Christian, Jesus is my Savior, I’m washed clean and the Holy Spirit lives inside of me and that makes my life fabulous, fulfilled and perfect.  I just wouldn’t be telling the truth.  My life is HARD!  But you know what?  Jesus is with me every step of the way – and that makes all the difference in the world!

I am the mother of 7 very unique children.  Very unique…

JuneBug is my oldest.  She is my firstborn ‘autism spectrum disorder’ child.  She was diagnosed at 6 with Epilepsy and at 7 with Auditory Processing Disorder.  At 13 she has been officially diagnosed with Autistic Disorder.

RoseBud is my third oldest.  She had apnea 12 hours after she was born.  She was in the hospital multiple times as an infant.  She has had every test known to man, and when she was 2 she was diagnosed with PDD-NOS and Epilepsy, as well as microcephaly and encepholpathy.  At 7, she was re-diagnosed with Autistic Disorder.

My other children unique in their own ways.   They have grown up with their sisters on the spectrum, which has been both a challenge and a reward.  It is a struggle and a joy every day.  You can read more about them at the PB&J Tales.

Girly Autism is my attempt to put in writing the everyday challenges and triumphs that I go through with my girls.  I am honest, sometimes brutally so.  I will write it like I see it.  I’m in the trenches today, and for many years to come.  This is my way of decompressing and of sharing my frustrations.   It is a way of sharing my joys in the unique ways these two children ‘grow’.  I would love it if anyone out there in the world could be touched, encouraged, or even amused at my lack of perfection – but mostly this my cathartic venture – to get it all out in order to make more sense of things.

One out of 110 children is diagnosed with an autism spectrum disorder.  One out of every 4 children on the spectrum is a girl.  One out of every 4 children with Autism is diagnosed with Epilepsy.  Our family is a minority within a minority within a minority – two girls on the Autism spectrum with Epilepsy.

This is what Girly Autism is all about.  My girls.


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My girls on the Autism Spectrum.

 

Welcome to Girly Autism!

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3 Comments

3 thoughts on “Welcome to GirlyAutism!

  1. Wow…I spent some time tonight on this site. It is moving and informative. You’ve done a super job. I hope to spend some more time reading through the posts.

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