Well, here are a few things to give you info on the partial complex seizures Rosalie has had since she was a little baby. Her partial complex seizures are just simple staring spells. She gazes off in the distance with a faraway look. When you speak to her, she can turn towards your voice, and even answer sometimes. But she’s not all ‘there’. She had these over and over every day for years, and the medications she is on still hasn’t taken them away completely. When she is sick or overly tired they start getting more frequent.
In this video, I am talking to Rosalie and she starts staring out into the street. When I start talking to her and she turns back towards me and starts talking, she is still staring through me, and not looking at me. You can’t really see this in the video so much but believe me…the seizure lasts for quite a while even when she tells me she’s alright.
Can you see how this could be misinterpreted for simply being tired? She would have these over and over and over all day long when she was a baby/toddler.
In December 2009 she had her first of several Grand Mal seizures. I didn’t think to get out the video camera – mostly because there was blood, vomit and chaos going on. But also that I was totally just trying to hold it together. Her medications keep getting increased in order to counteract these seizures and since those few episodes before Christmas, and they are helping. But she’s still having the partial complex seizures breaking through the medications.
Yeah, sometimes their mind goes a million miles a second and they are in their own little world. Face it, sometimes we all would just like to ignore people for a few minutes and just focus on what we are thinking. But alas, for Rosalie that is a constant struggle… You wouldn’t want a 7.5 year old girl with autism and epilepsy to help for a week this summer would you? Just kidding – I could not let her go without me being there. We’ve got to figure out this seizure thing so we can get her on the right meds.
Two typical tests the neurologists do to rule out anything are the EEG and the MRI. This is when Rosalie had her ambulatory EEG (that’s where they glue the EEG on and leave it for 24 hours).
I couldn’t take a camera into the MRI room, but I got one photo of her in the MRI waiting area.